Advance care planning resource for young adults with chronic conditions


Posted: October 19, 2021 at 6:27 am MDT|Update: 1 hour ago

SAN FRANCISCO, October 19, 2021 / PRNewswire / – Health Advocacy Summit (HAS), a nonprofit organization that hosts events, meetings, and programs to empower young adults with chronic and rare conditions, has released a new resource on pre-planning for care.

Advance planning allows individuals to establish their wills in case they are unable to do so in the future. Typically, advance planning is assigned to seniors, but HAS considers it essential for all ages.

“As a young person with lifelong serious illness, it can be difficult to think about the future. There is a lot of uncertainty and no one wants to think, let alone plan, for the worst-case scenario. ‘The unpredictability of our health is what makes advance care planning so important,’ says Sydney Reed, director of operations at HAS. “These are critical decisions about your quality of life that shouldn’t be made by anyone else.”

The resource page includes a glossary to highlight important concepts in advanced planning, as well as talking points for individuals to consider. Additionally, resource seekers can find tools on how to select your health worker or proxy and state-specific advance directive forms.

Throughout the COVID-19 pandemic, HAS served as a hub for young adults with chronic and rare diseases around the world. The HAS runs six virtual support meetings per month in addition to a varied program in higher education and civic engagement. Advance planning is the last of the resources, led by Gabrielle Labovitz, head of research and resource development at HAS.

HAS recognizes the lack of support and resources and is dedicated to raising adolescents and young adults with chronic and rare diseases around the world.

To learn more, visit

About the Health Promotion Summit
The Health Advocacy Summit (HAS) connects and empowers young adults with chronic and rare diseases through meetings, events and programs. As part of an ongoing commitment to provide ongoing support, HAS facilitates six virtual meetings per month in addition to higher education advocacy campaigns and more. For more information, visit The Young Adult Crohn’s and Colitis Network is a HAS program dedicated to empowering and connecting young adults with inflammatory bowel disease. For more information, visit HAS and its programs are run entirely by young adults with chronic and rare diseases.

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SOURCE Health Advocacy Summit

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